硬皮病的口腔和牙齿表现极为常见,然而,它们在风湿病学中经常被忽视,在牙科中却知之甚少。先前的研究表明,有必要了解硬皮病患者及其护理参与者的口腔和牙科经历。这项范围审查的目的是,第一次,全面绘制关于硬皮病口腔和牙齿表现的识别和管理的已知信息,硬皮病患者是如何经历这些的,并探索硬皮病良好口腔和牙齿护理的障碍和促成因素的关键特征。使用六个数据库(Embase,PubMed,心理信息,ASSIA,Scopus和SSCI),根据系统审查和荟萃分析的首选报告项目-范围审查的扩展。灰色文献也包括在内。如果全文和摘要以英文提供,则研究有资格纳入。2002年至2022年出版,重点关注成人硬皮病口腔和牙科护理的概念,无论是关于识别和管理,最佳实践的推动者和障碍,或者病人的经历和幸福。旨在了解患者生活经历的定性研究在文献中存在显着差距。同样,在风湿病中,对硬皮病的口腔和牙齿表现缺乏关注。确定了三个关键特征,这将促进研究和临床实践中的最佳实践:多学科护理的必要性;集中患者体验的必要性;以及减轻牙科护理障碍的必要性。我们得出的结论是,牙科领域对硬皮病的认识有所提高,并简化了牙科和风湿病学科之间的转诊程序,为了能够早期识别和管理硬皮病,是至关重要的。
Oral and dental manifestations of
scleroderma are extremely common, yet they are often overlooked within rheumatology and poorly understood within dentistry. Previous research has indicated the need to understand the oral and dental experiences of people living with
scleroderma and those involved in their care. This scoping review aims, for the first time, to comprehensively map what is known regarding the identification and management of oral and dental manifestations of scleroderma, how these are experienced by people living with
scleroderma, and to explore key characteristics of barriers and enablers to good oral and dental care in
scleroderma. A scoping review was conducted using six databases (Embase, PubMed, PsychINFO, ASSIA, Scopus and SSCI), according to the Preferred Reporting Items for Systematic Reviews and Meta-analyses - extension for Scoping Review. Grey literature was also included. Studies were eligible for inclusion if the full text and abstract were available in English, published between 2002 and 2022, and focused on the concept of oral and dental care in adults with scleroderma, either relating to identification and management, enablers and barriers to best practice, or patient experiences and well-being. Qualitative research which seeks to understand patients\' lived experiences was a notable gap in the literature. Similarly, there was a significant lack of focus on the oral and dental manifestations of
scleroderma in rheumatology. Three key features were identified which would facilitate best practice in research and clinical contexts: the necessity of multidisciplinary care; the necessity of centralising patient experience; and the necessity of mitigating barriers to dental care. We conclude that increased awareness of scleroderma within dentistry and streamlining referral procedures between the disciplines of dentistry and rheumatology, to enable the early identification and management of scleroderma, are crucial.